My story now

February 5th, 2010 Leave a comment Go to comments

It all started in 2008. I don’t know for what reason it did, but I stopped thinking about that question. I barely remember how it started. Lots of things happened since .

I only remember that my shoulder hurt, that I visited many doctors an that I was scared. The doctors , extremely relaxed, were telling me that I’m fine and I can go home and enjoy life, because that is what a 25 year old should do. I was never too hypochondriac, so I don’t know how or where did I find all the perseverance to keep seeing all those doctors , one after another, asking for a diagnosis.

I took their advices couple of times, but the pain didn’t care about what the doctors were saying or about my age. Without even knowing how and when, I found myself, after 6 months, in a medical clinic in Vienna, ( lucky me !, and please believe me when I say that, although I wished it wouldn’t be the case, I have enough arguments) mentally preparing myself  for the following day, when I was supposed to go through a  lymph node extraction surgery, because  the biopsy was the only way they could  confirm a lymphatic cancer diagnosis, which, they said, seemed almost a sure thing considering the symptoms and the blood test results.

It’s not a surprise anymore that in august 2008 the diagnosis was confirmed. Lymphatic cancer, (Hodgkin disease), stage IIB, Bulky.

 I immediately started the standard chemotherapy treatment recommended  by the hemato–oncologist in Vienna.

For my family all this was devastating. For me it was like an  earthquake. There are plenty of words that can describe the feelings I had , but they all seem empty now.

Also, its not a surprise anymore that my disease proved to be outside the statistics that were saying that 90% of  people with my type of disease are cured after the first line of standard treatment. 

I tried almost all chemotherapy protocols that are used to cure my type of cancer, I also “served” a strong dose of radiation therapy. Another lymph node biopsy. I tried also to “enjoy” a marrow absorption from the hip bone.

Considering all this, my disease, even if it did respond to chemotherapy for a while, got stubborn and decided to show me who’s the boss. And it managed to transform me from the perfect candidate  of a complete remission through standard treatment into a perfect candidate for an autologous stem cell transplant .

But, although I wouldn’t imagine that, taking into consideration the fact that I was a spoiled kid, I realized that I can be stubborn too. And I also realized the fact that I can be stronger, that I have only one “malfunction” (a major one, it’s true), but I am also equipped with a whole set of organs and systems that can fight, that can help me and that are on my side in this war against the disease.  The doctor was telling me the same thing, to think about the fact that I have a problem but beside that, I also have many healthy and strong organs.

I decided to finish this battle as a winner. And to be patient, if that’s required too. And to refuse to let anyone or anything stop me.  I’ve always had goals to reach but  none of them was so important like this one. So I decided to win …for me, for the loved ones, or just in order to beat the statistics…

I accepted the fact that in order to be able to fight the disease, I needed money, and in order to obtain the needed amount of money, I had to ask people for help, even if this seemed like a weakness, a lack of common sense, stepping on my ego, anything I can think of except the right thing to do. And still, I asked for help and I got it.

I think that what happened in August last year was like a true miracle. Solidarity, compassion, care and help – all of these granted unconditionally to me – a complete stranger to most of them. This experience changed my personal values and my way of thinking forever. In the best way possible. I don’t want to exaggerate, but I think I was given life and friends. People that, not only helped me financially when I was out of options, but  people that I felt close to me when I was hospitalized for the transplant and after, in the recovery period. I was reading my mail almost daily and there were lots of questions, every one of them was having ME as a subject, how am I, how do I feel. Everyone was so close to me, praying for me, comforting me and believing in me. Thank you so much! I’m telling you, without any exaggeration, that you can never imagine how much it meant for me what you all did during those moments!

With your help I managed to start fighting the disease and to go through the first transplant. I did the transplant on the 16 th of October 2009 – a new birthday, as the doctors were telling me. And I even got a gift: the transplant. This helped me to get again a few steps ahead of the disease and to be able now to make plans for a second transplant, that even if the first one didn’t get my disease into remission, as we all hoped.  The first transplant managed to slow down the disease and gave me another chance to get back into the battle.  It gave me a couple more priceless months .

Looking back, although it’s not yet the moment to do that, I realize that I’ve been through a lot, that it was difficult, and that I’ve dragged the loved ones along with me through all this. But I realize that all this is worth it, not that I would ever doubt it. Any sacrifice, every pain and any won battle is surely worth the effort. I don’t want to pity myself or shiver in fear. I will stand tall and go forward.

I have one more step to take. A big step. A transplant. An experimental one. Experimental because they didn’t manage to find me a matching donor and they are forced to use umbilical cord stem cells as an alternative option. A transplant that is harder to bear, riskier, and more invasive than the previous one. But its my last chance against the disease. It’s my last card to play. My life  is at stake .

I didn’t start to write this story on the basis that I’m some sort of a talented writer or because I thought it’s a good story. But I also didn’t write it with a total lack of interest. I tried to expose my story from the beginning with the hope that this way, I can convince you one more time to offer me your help.

Because I still need help. For me, even this last card has a price tag. 140 000 Euros from which I lack 80 000 Euros. I realize, it’s a huge amount, but my life is at stake! And I can’t and I won’t give up now. I know that I can be cured, I know that I’m in good hands and I also know that things can change!

This is the reason I am writing to you. I’m trying to convince you that I deserve your help one more time. That I can’t give up the idea of winning the war after so many battles that I won. I want to be cured. I want to get back home, I want my life back. And of course I have big plans and dreams, but at this moment I wont start making any promises. I promised myself and I know I will keep my word.

But I need a chance! I need my life!

  1. cristina topescu
    February 7th, 2010 at 17:15 | #1

    Cristina, scumpa mea, lupta in continuare, nu mai e nevoie sa-ti spun eu asta, ai dovedit ca esti foarte puternica, suntem multi aalturi de tine, o sa trimit la toti prietenii mei scrisoarea ta, o sa trimitem sms-uri cat mai multe, o sa incercam sa te ajutam, as face si o filmare cu tine, daca as putea sa te gasesc, as vrea sa-ti trimit si niste lucruri importante pe care sa le citesti, nu e mult, dar uneori au efecte miraculoase. De fapt nu tine de miracol, ci de propriile noastre forte, pe care noi nu ni le cunopastem cu adevarat. Poate te va ajuta si asta. Incerc sa aflu adresa ta de mail, draga mea si ti le trimit, ai incredere, o sa fie bine, ne rugam pentru tine si incercam sa te ajutam cumva, curaj, Dumnezeu e cu tine, El o sa aiba grija de tine si de sufletelul tau! Cu mult drag, cristina topescu

  2. admin
    February 7th, 2010 at 17:29 | #2

    Multumesc mult!

    dinucristina8223@yahoo.com

  3. February 7th, 2010 at 19:40 | #3

    Cristina,
    Daca ce ai scris mai sus sunt gandurile tale, atunci sigur vei scapa. Sunt alaturi de tine. Cred ca te pot ajuta prin terapii complementare sa-ti imbunatatesti imunitatea, sa rezisti mai bine si de ce nu, sa invingi boala. Eu lucrez la cauzele bolii. Daca vrei, ma poti contacta sa vezi despre ce este vorba. Esti minunata. Nu ceda. Corpul nostru este natura mintii noastre. Cu o gandire si atitudine adecvata ne putem ajuta.

    Cu drag,

    Ioan

  4. Simona Manescu
    February 8th, 2010 at 09:12 | #4

    Dumnezeu sa te ajute sa treci peste aceasta incercare.
    Cu drag, Simona Manescu

  5. vladdusz
    February 8th, 2010 at 11:32 | #5

    Ceau ,

    am vrut sa-ti spun ca trebuie sa te gandesti foarte serios ce vei face de acum inainte , uita de boala … ve-i trece cu bine peste ! Poate suna putin deplasat … dar la cati oamnei se gandesc la tine , se roaga pentru tine si te ajuta … hmm , sper sa nu indraznesti sa-i dezamagesti ! :) ~
    Gandeste-te ce vei face dupa … stii cum se spune ” eu dau, dar tu ce dai in schimb ? ” , nu te gandi la prostii , ma refer aici la redirectionarea ajutorului ( material si moral ) pe care la-i primit , il primesti acum si il vei primi in continuare , ce vei face cand totul va fi trecut … ?
    te pup , ai grija !

  6. James
    February 8th, 2010 at 16:29 | #6

    AJUTATI-NE SA CRESTEM PTR CA ACESTE TRAGEDII SA NU SE MAI INTAMPLE.AVEM NEVOIE DE MEMBRI CARE SA POSTEZE LINKURI CATRE CAZURI DE PERSOANE GRAV BOLNAVE SI DE MULTA MULTA PUBLICITATE PTR CA ACELE LINKURI SA AJUNGA ACOLO UNDE TREBUIE – LA OAMENII CU SUFLETUL MARE. http://www.facebook.com/group.php?v=wall&ref=mf&gid=258318893579

  7. Cristina
    February 8th, 2010 at 18:25 | #7

    este doar o experienta pe care o ai si orice se intampla in lumea asta , dupa cum cred ca stii deja este intr-un echilibru, ritm …alb-negru, sus-jos, gandeste-te ca toate se petrec deodata, vizualizeza parte alba, lumina…
    Dumnezeu sa-ti ajute si sa mai vorbim.

  8. Manu
    February 8th, 2010 at 22:34 | #8

    http://unchiulmihai.ro/

    poate te va ajuta… e un sfant cu ajtorul lui s-au vindecat multi… de boli asemanatoare ca si a ta.
    Dumnezeu să te ajute să poti să treci cu bine!

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