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ANOTHER STEP AND MOVING FORWARD

Once again, I don’t know where to start. Once again, so many things happened since my last post therefore I’m not sure in which order I should tell you everything that happened lately.
First of all , I want to thank you from my heart for your help, for everything ! I have managed to raise the amount of money that was lacking, money  needed in order to pay for my transplant. I cannot express how thankful I am.
Also, I want to thank everyone that   made possible the charity concert that took place on the 10th of March, in Jukebox Club. I would like to thank to all of my new gained friends, to the people who organized the event, to all the artists that agreed to sing  for me, and also to the artists who, due to the lack of time and Thank you very much to all my new friends, thank you very much to all those that helped organize the concert , to the artists that accepted to sing for me at this event and to those artists that, due to lack of time and lack of space on the poster,  agreed to participate at  the event as guests.  I would also like to thank to all the media and mass media representatives involved.
Many thanks from the bottom of my heart to all of you who attended this event and thank you so much CRISTINA ! But this is another story !
I will stop for now, otherwise you will tell me that I’m not at the Oscars. But you can imagine how all of this makes me feel, once again.
 
Now you could say “ ok , you have the money, so  you can do the transplant anytime now” . Well , I wish it would have been that easy. Unfortunately, in the meantime, the disease started to fool around, it’s in progression again as deducted from the Pet-CT scan that  was supposed to be the last examination of that kind before the transplant. And because a transplant made while the disease is in progression would be  uneffective, the doctors decided we need to stop the disease again with two more chemotherapy cycles ( two would be ideal , maximum three) .
 
Also, the doctors have decided to perform another biopsy, to reconfirm the diagnosis, before the transplant . A reasonable measure considering the fact that my disease doesn’t react quite tipically, so it has to be checked before every big step. I was diagnosed in august 2008, they reconfirmed the diagnosis in 2009 through another biopsy ( two histopathologists confirmed the diagnostic independently) and now they want, again, recent certainty.
Last night I was discharged from the  clinic where I underwent surgery  on Wednesday, surgery performed in order to extract a suspect lymph node that will be used for a new histopathology  analysis . Here it takes one week for the results to be ready.
I am feeling ok after the surgery , they have a brilliant surgeon here . It’s his fourth surgery performed on me , with no after-surgery complications and with almost no visible scars ( not that I would care about that right now, but in a few years , while on the beach, it will matter ! J )
 
So basically the plan is as follows :
 
-         We have to wait till Wednesday or Thursday for the  wound to heal ( I have a drain – a tube and a plastic bottle with a vacuum – responsible for collecting the lymphatic and interstitial  liquid until healing , in order to avoid any complications) .
-         On Wednesday or on Thursday , depending on the surgeon’s recommendation, I will start the first round of chemotherapy – three days will be spent in the hospital , two consecutive ones and another one on the 8th day of the chemotherapy round.  I will be going through two rounds of chemotherapy after which we will
-         Re-evaluate the situation based on a clinical exam, ultrasounds and, if necessary, a MRI.   As soon as the disease will be stopped from progression we’ll get to the
-         TRANSPLANT
We hope and we estimate that all should take around two months, considering the fact that one chemo round lasts between 3 weeks and a month , depending on how fast the cells recover after chemotherapy.
You are probably wondering “what if the disease doesn’t stop”. If the disease doesn’t stop, we’ll use another type of chemo. There are two alternative chemo treatments that proved to be effective in my current situation. The disease is at first sensitive to the chemotherapy, and because of that we’ll do everything in an alert pace, in order have the best results. And besides that, THE DISEASE WILL STOP !
Enough, I won’t  bother you any longer with technical details.
 
Until now I avoided to post about this stage of the treatment on the blog because I wanted to make sure that from a legal point of view it won’t negatively affect my medical file that’s being reviewed by the Public Health Committee. I have analyzed the current situation, together with doctors, friends and colleague  lawyers and we came to the conclusion that my file is, from a medical and legal point of view, beyond any form of criticism. Accordingly, I have told you the story and I’m waiting, along with my friends and with you beside me, the Committee’s response.
 
I end my story here, not before I’ll make the ferm promise to keep you updated and to do everything in my power in order to win the battle against this disease, as well as you did everything you could to help me in this battle !
 
Thank you!
 
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