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UPDATE 26.08

After a difficult period of time, here comes another one. I kept quiet for the last few days, some of you probably noticed that I didn’t even reply to your emails.
 
What seemed to be a cold, maybe an infection kept me in bed for the last few days with fever, fatigue and a general bad condition.
 
Now it’s a little bit better, but it’s still not over yet.
 
And I have news again. Not good news…Because the result from the Pet-CT is not good, showing that the disease is progressing, they’ve delayed the transplant again. Another 6 to 8 weeks, this time being used for 2 chemotherapy rounds.Chemotherapy starts on  Monday, because  all of the traces of the  infection I had need to be gone in order to avoid any unnecessary complications due to my compromised immune system.
 
Why are they insisting that the disease shouldn’t be in progression when I do the transplant? Well, because in order for the cells to destroy it, the disease should be in a weak, non-active state. They need somehow to temporary stop the disease with the cumulative effect of the normally dosed chemotherapy and the high dose chemotherapy that it’s being administered in order to destroy the marrow, and in my case also with total body iradiation.
 
And because I still don’t have stem cells from an adult donor, it is impossible to keep the disease under control long enough in order to have real chances of success.
Stem cells collected from umbilical cord start to do their job  in 4 to even 6 weeks after I receive them, calculated from the moment of the transplant, (which is performed immediately after the high dose chemotherapy), and usually my disease starts advancing again after 2 maximum 3 weeks after every chemotherapy protocol we’ve tried so far.  And because of that, we are trying to find another protocol… Again..
 
Eventhough it sounds weird, there is a good part in all of this: we can keep looking for a donor. So, the testing for finding a matching donor continues. You can find all details in the post below. Same hourly schedule, same days and you will be also registered in the Registry of Stem Cell Donors.
 
Same info is required from you as before, I will do the appointments ,based on the emails I’ll receive from you on dinucristina8223@yahoo.com .
 
Thank you!
 
I’m still waiting for your emails and I want to apologize for my previous silent days. 
Talk to you soon!
Cristina
 
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